> It's me J... I had my second > appointment with the
> neurologist at University > Center . I'm so
> freeking discouraged. My EMG was normal so he won't
> treat me or do spinal
> tap. My balance is a mess and I can't feel soft
> touch like a soft cloth or
> feather on my feet and I can't distinguish between
> sharp or dull on the
> bottom of my feet. My legs tingle and feel numb and
> feel like ants are crawling on them all the time and he can see that my
> balance is a mess but
> he said the normal EMG shows that it's not a neuropathy even though he
> states that the small nerves that allow you to feel things like a feather on your feet can't be detected in the EMG?
He wants me to take a Parkinsons medication b/c he said it will help with my horrible "restless" legs at night.
I'm tired, sick of being off balance and my
> legs won't get me up stairs without pulling on the rail. Why won't he try IVGg and just see if
> it works?? He wants to see me in one month.
Is there some good scientific literature on this that I can bring for him to read?
Thanks so much for your help again.
Dr Khan : Cidp CAN CAUSE RESTLESS LEG AND this proves RLS is really autoimmune. It is better to use anti inflammatory drugs as compared to anti parkinsons in such condition.
Answer is YES & IVIg is the treatment Note ( he finally got the treatment and has been doing well)
Kevin Got IVIg finally after a diagnosis of CVID AND small fiber CIDP almost 10 years after his diagnosis and all these neurologist he saw at top University Hospitals .............................. incompetence
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Read, ABOUT MISDIAGNOSIS OF CIDP
The diagnosis page provides a one minute guide how to diagnose a autoimmune disease.
The Diet page provides a easy to follow anti-inflammatory diet.
This page is about information on chronic inflammatory neuropathy.