I want to congratulate you on your wonderful
website on CIDP.
It has taken 7 years to diagnose my CIDP
recently start IGIV treatment -- and it has been a miraculous cure
My Neurologist for years insisted I
had CMT when I knew this was unlikely since I had no family members
with this disease. Even after an expensive genetic blood
test for CMT came back as negative this Neurologist still insisted I
In 1998 I had a very severe reaction to a
vaccination I had for a trip to India.
Almost exactly 30
days later I first notice some tingling in my toes. I was sure
my illness was related to my reaction to this vaccine and kept
reminding the Neurologist of this. I had read and
studied about CIDP and kept suggesting that this might be my
diagnosis - but he continued to insist I had CMT!
Finally a month ago he ordered a spinal tap --
and found I had elevated proteins so I finally began the IV and the
results of been nothing short of amazing.
Anyway - I wanted to share my story with you -
and congratulate you on your wonderful website.
IVIg and IGIV are the same drug IGIV is used by