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 Cystic Fibrosis Treatment

  Treatment of  disease read our e-book

Cystic Fibrosis part-3 Return to previous page
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          Pancreas

Sometimes the lungs become infected with a fungus and antifungal medication is required.

Inhalers
Inhalers to 'open up the airways' as much as possible may be used. This is similar to the treatment used for asthma.

Dornase alfa
This is a drug given by nebuliser in some cases. It helps to break down and to 'thin' the thick mucus making it easier to cough up and clear the mucus from in the airways. It may reduce the number of lung infections and help to improve lung function.

Oxygen
People with advanced lung disease may benefit from oxygen, particularly overnight.

Treatment for pancreatic problems

Nutrition
The enzymes needed to digest food are greatly reduced in most people with cystic fibrosis. Therefore children with cystic fibrosis need a high fat and carbohydrate diet should take vitamin-D 3000-5000 units daily  with omega-3 3-10 grams daily. A dietician will usually give detailed advice. High energy food and drink supplements may also be needed. In addition, vitamin supplements are needed as many vitamins in food are not absorbed very well.

Enzyme supplements
In most cases, enzyme supplements are needed to help to digest food. (These replace the enzymes which normally come from the pancreas.) You need to take these supplements every time you eat food. This can mean taking many doses each day.

Other treatments

A range of other problems which are related to cystic fibrosis may develop in some cases and require treatment. For example:

  • Salt depletion may occur in hot weather and may require salt supplements.  They should drink 1/8 tea spoon of sea salt in each glass of water and drink 7-8 glasses of water daily.
  • Fenugreek is very beneficial.
  • Liver problems develop in some cases and may require specialist liver treatments.
  • If diabetes develops it usually requires insulin treatment.
  • Nasal polyps sometimes develop and can be treated with steroid nasal drops and sprays.
  • Acid reflux from the stomach into the gullet (oesophagus) is common and can be treated with apple cider vinegar which reduce the acid content of the stomach juices.
  • Constipation is quite common and may require regular laxatives.
  • All people with cystic fibrosis should be up to date with routine immunisations, and also have an annual 'flu jab' to prevent influenza.
  • Hydrogen peroxide should be used by all patients.
  • IVIg is very effective in cystic fibrosis.

Newer treatments are being researched and developed and if found successful may become more widely used in the future. For example:

  • A lung transplant has been used in some cases and may become more common.
  • Gene therapy. This involves using an inhaled spray to deliver normal copies of the cystic fibrosis gene to the lungs.
  • Drugs are being tested which may correct the abnormal salt and water regulation of cells that leads to thickened mucus and secretions being made in the lungs and other organs.
  • IVIG the miracle of mircales

What is the outlook (prognosis)?

If the recommended diet and treatment guide is followed a patient can fully recover.

Cystic fibrosis is a lifelong condition. With improved treatment there has been a dramatic increase in the survival of people with cystic fibrosis over the last 20 years or so. In the 1960's and before, most babies born with cystic fibrosis only survived for a few months or years. Today, many people with cystic fibrosis are living into their 30's and beyond. With optimal care and treatment, it is estimated that about 8 in 10 of today's children with cystic fibrosis should live into their mid 40's. With treatment, most people with cystic fibrosis can live reasonably normal and productive lives.

However, there will be times when symptoms are more severe, mainly when a chest infection develops. Even with treatment, the main risk is recurring chest infections, and pneumonia. This can have a recurring damaging effect on lung function which can get worse over time. Death in childhood or early adulthood is still not uncommon. Most people with cystic fibrosis die of lung complications, mainly respiratory failure.

Genetic counseling

People with a family history of cystic fibrosis may wish to have genetic counseling and testing to find out their risk of passing the condition on to their children. A simple test can be done to some cells which are scrapped from the inside of the cheek. The test can detect the cystic fibrosis gene which can show if you are a 'carrier' of the abnormal gene.

Further help and information

  Return back to first page of Cystic Fibrosis

 

 
Cystic Fibrosis modern & alternative treatments